Dementia USA
"Support For People With Early Dementia"
 

Welcome to DementiaUSA!

Have you been diagnosed with Alzheimer's, vascular dementia, Pick's disease, dementia with Lewy bodies, frontal lobal dementia or another type of dementia? We have as well. You are among friends here.

We are the Aricept generation, and we're here to talk about living with dementia. As patients afflicted, we have become better educated about managing dementia. We have shared our experiences with others who have dementia as well. And we'd like to share with you.

What Is DementiaUSA All About?

We feel an organization such as DementiaUSA is needed. This conclusion comes after several years of research, communicating with many persons affected, advocating through the Alzheimer’s Association and speaking with politicians and organizations related to dementia. It is our intention that this newly formed organization will serve to unite people with all forms of dementia and those affected by it.  Our organization will support, comfort, and encourage us as we live with dementia.  There is strength in unity.  We believe DementiaUSA can make a major contribution to a better quality of life and ultimately help discover a cure for people with dementia.


How Can DementiaUSA Help Me?
  
Whether you have dementia, or you care for someone who does, dementia is not easy.  Hopelessness, fear, and depression can rapidly overwhelm.  But it is possible to avoid or overcome these effects as we adjust, adapt and maintain hope.  By refusing to surrender, we can have a better quality of life and remain functional, contributing persons much longer.  Our intent is to provide the education, hope and encouragement  to live a better life and manage this disease.

Why Should I Be Concerned About Alzheimer’s Disease Now? Isn’t It an Old Person’s Disease?

Alzheimer’s Disease is the major cause of dementia, but not the only one.  There are about 4.5 million people in the U.S. who presently have Alzheimer’s Disease. It is not just an old person’s disease. There are about 600,000 people with Early Onset Alzheimer’s from 30 to 65 years old in the U.S. About 60 or more forms of dementia afflct hundreds of thousands of children through middle-aged Americans.

As the baby boomers age, the number of persons with dementia will mushroom. With the increasing life expectancy, it is reasonable to predict that approximately 30 per cent or more of those living in the U.S. today will have Alzheimer’s disease. Additionally, other forms of dementia will cause the numbers to grow. While Alzheimer’s disease is considered the 7th leading cause of death presently, it may well become the leading cause of death in the U.S.  Of the 300 million people living in the U.S. today, untold die with dementia. We must act now to prevent one of the worst epidemics in history.
Who Else Can Help?

We are not doctors, and what you read here should not be construed as medical advice! Professional neurologists, psychiatrists and other physicians specializing in dementia should treat dementia. Please see a doctor with your medical questions.

Accurate medical information and treatment is important; physicians and other organizations can help you enormously. We, on the other hand, know what it is like to live with dementia from the inside out.

Click on the blue buttons to the left to explore topics. Click the links (below the clouds) to get our take on diagnosis, treatment and living with dementia.
How Can I Help?

People with dementia can best be helped by helping others.  DementiaUSA offers  the opportunity to be an advocate and a friend. Come and be a fellow traveler with us as we navigate the Dementia Road. We can all work together so that many persons affected by dementia will have a better quality of life.

What If I Am Ashamed, Scared, or Embarrassed?
   
Shame and fear are common with people diagnosed with dementia. But it doesn’t have to be that way!  Many of us with Dementia have decided to confront and over-come these negative emotions. We do so by educating ourselves about the truth of dementia  and by sharing our knowledge and condition openly. We hope that this openness and public presence will encourage others to free themselves from the oppression of shame and fear.

I Don’t Have Dementia. How Can I Help?

Whether you have dementia, or not, we welcome any help. Only a few of us cannot do it alone. The help of those who do not have dementia is absolutely necessary if we are going to succeed. We need people of all kinds and professions to help us. Contact us to offer help.  We can definitely use it.
Advocacy

We advocate for increased research funding, increased care funding, and for an improved quality of life for those with, and those affected by, dementia. Help is needed. Together we can accomplish many things. We also recommend  supporting the Alzheimer’s Association, the Caregivers Alliance, the National Family Caregivers Association or another suitable organization. The efforts and advocacy of these orgnizations have accomplished great things. They can only continue to do so if we support them. We at DementiaUSA also have many plans and need help. Please see our blog site for information on current events and efforts, for further information, or to enlist.
Traveling the dementia trail together, we can laugh about the humorous situations we find ourselves in and commiserate about our frustrations. So get in touch! We want to hear your experiences as well. If you are interested, some day you just might find your name here, too.
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