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ABOUT US
See Our Mission Statement and Goals Below:
Charles Schneider is a St. Louis resident who spoke at the national Alzheimer's Association Public Policy Forum in Washington, D.C. in June of 2006. In December he was the subject of a feature article in US News and World Report about early onset Alzheimer's Disease. Charley was a firefighter, a police detective and a construction worker diagnosed at age 52 with early-onset Alzheimer's disease and later with dementia with Lewy Bodies as well.
After a disability retirement, Schneider has been active as a public speaker, activist and author of Don't Bury Me; It Ain't Over Yet. He serves on the Board of Directors of the Dementia Advocacy and Support Network International (DASNI), and was appointed to the Patient Advisory Group for the national Alzheimer's Association's early-stage initiative. Schneider was cited by the Missouri legislature in 2005 for his contributions to Alzheimer's awareness. |
Schneider has appeared in local and national news media and in educational films. Most recently he was interviewed by Robin Smith for XM radio. He is a committed Christian and happily married for thirty-six years to his wife, Barb. He has two children and five grandchildren in the St. Louis area.
Since diagnosis, he has dedicated the remainder of his life to promoting the early recognition and treatment of dementia and empowering people with dementia and their families to live joyful and productive lives. He wants to reduce the fear and eliminate the shame of living with dementia and to promote research into a cure for dementia within the next few years.
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 Carole Mulliken is a founding board member of the Dementia Advocacy and Support Network International (DASNI), where she served for six years on the Executive Board, and the last three as Vice President.
In her position she served as DASNI’S email community’s moderator and host, and shared responsibility as chat room host for several years. In 2004 she organized and led a three-day camp/conference for DASNI entitled “No Time to Lose.” She also developed "VOICE," a newsletter for people with dementia, made available primarily over the Internet.
Locally, she co-authored a proposal for a telephone outreach program designed to involve people with dementia in making supportive outreach calls to other people with dementia. The St. Louis Alzheimer’s Association chapter found funding for the program. Now in its second year of operation, project “Let’s Talk” continues to provide phone support for people with dementia.
Mulliken also served on the planning committee for the Franklin County, Missouri’s, Alzheimer’s Association Memory Walk, helping to raise money for Alzheimer’s research and family services. She has written articles and news releases for DASNI and for the St. Louis Alzheimer’s Association chapter newsletter and made presentations to the St. Louis Alzheimer’s Association staff.
In 2004, Mulliken wrote a “Love Letter to Caregivers,” which was read on the steps of the Missouri state capitol during Caregivers Appreciation Day in Jefferson City. Her presentation, “Dealing with the Black Box – the Brain in Decline” has been delivered to home health care workers in her area.
Mulliken acquired a B.S. in Secondary Education and an MA in Behavioral Science from the University of Missouri at St. Louis. Her areas of specialty included high school and middle school teaching and counseling. She also consulted with many school districts across the country as a teacher trainer through a U.S. Department of Education’s instructional improvement program. She also directed a two-county adult education program in Illinois.
Suicide crisis intervention has been a life-long interest. She served as a volunteer crisis line worker and was later employed as the program’s Volunteer Coordinator for the second oldest suicide crisis intervention agency in the US. Her article, “Night Lines” became a cover story for the St. Louis Riverfront Times during that time.
Mulliken has authored or contributed to a number of newsletters, magazine and newspaper articles, curriculum guides and grant proposals.
After retiring in 2000 on disability due to vascular dementia of the multi-infarct kind, she became an advocate for people with dementia. She continues her interest in neuropsychology and in helping others.
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DementiaUSA MISSION STATEMENT: TO DEFEAT DEMENTIA!
GOALS:
I. Raise awareness of the numbers of people in the early stages of dementia and of their unique needs.
II. Empower people with dementia to take active roles in their own lives and the management of their illnesses.
III. Promote connections between people and organizations dealing with dementia
IV. Promote research into treatment and cures for illnesses causing dementia
V. Promote strong advocates for effective public policy, products, services, resources and activities designed to improve the quality of life for people with dementia and for their carers.
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